All a mother wants, above and beyond anything else in life, is for her child to be happy. Itβs a subliminal inclination fueled by emotion, like the echo of a throbβ¦a primal instinct driven by that first, curious flutter in the womb.
And it never goes away.
My grandmother is no different from any other mother in this respect, even though her youngest was born with an umbilical cord wrapped around her neck. Unable to breathe, my Aunt Micki was rushed to a nurse instead of Grandmotherβs open arms while doctors worked to change Mickiβs color from a pallid shade of blue to something that looked a little more like life.
Micki survived only to suffer her first seizure when she was nine months old. It was the earliest of many signs that something about her seemed different. Abnormal. Uncommon. Not right.
As months turned into years, βdifferentβ transitioned to βretarded,β a term loaded with so much meaning that it overflowed, creating a non-navigable chasm between Micki and other kids her age. Words can be transformative in both good ways and bad, and βretardedβ became a life-size label that would shade just about everything she did, starting with the length of the bus she boarded for school.
Both Grandmother and Micki learned to move under a cloak of filtered light that could only throw shadows on the stolen glances and downcast eyes of the world at large. Yet in those everyday moments where growth canβt really be measured, the bond between mother and daughter grew.
Given enough time, life will teach you that the only thing you can count on is change. Yet Mickiβs role never has. She is and always will be my grandmotherβs constant companion. Not her retarded companion, just a loving daughter and friend.
When my mom left home for college, Micki stayed. When my uncle took the same path seven years later, Micki stayed. When my grandfather died of a heart attack at the age of fifty-one, Micki stayed.
We donβt use the word βretardedβ anymore, or at least, we donβt admit it when we do. From my grandmotherβs perspective, that word has always misrepresented her youngest child. If you ask, sheβll say Micki came into the world just the way she was supposed to be.
Today, at almost ninety-three, the time-honored light in Grandmotherβs eyes is fading. Sheβs more feeble now than even a few years ago, and bones that used to bend under the weight of life now break. Yet she pauses and lingers longer than most because her remaining purpose sits beside her, quietly holding her hand. Theirs is silent proof that under the right conditions, the narrative of a love story can last forever.
My grandmother will tell you that sheβs here today because of youngest child. Not her abnormal, uncommon, retarded child, but her sweet, loving, beautiful daughter.
Sheβs not a surgeon, or a star, or even that girl from high school you wish you still knew. Yet if you ask Micki if sheβs happy, sheβll nod her head and reply,Β βYes. Yes I am.β
You donβt have to ask Grandmother the same question. The answer is obvious in the way she looks at her daughter, without bias or pity or doubt. To a mother, a child is simply a child and love is just love. Micki is her lifeβs greatest gift. We should all be so lucky.
On October 5, 2010, President Obama signed legislation requiring the federal government to replace the term βmental retardationβ with βintellectual disabilityβ in many areas of government. This measure, known as Rosaβs Law, strips the terms βmental retardationβ and βmentally retardedβ from federal health, education, and labor policy. According to the World Health Organization, about 15 percent of the worldβs population β or 785Β million people β has a significant physical or mental disability.Β
For anyone accustomed to my attempts at more humorous, light-hearted posts, I’ll be back next week to talk about either what I found in my neighbor’s trash, or the time I spent in my version of prison, or both. These topics aren’t remotely related, but probably should be.
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